- cross-posted to:
- aboringdystopia@lemmy.world
- cross-posted to:
- aboringdystopia@lemmy.world
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This story was described more accurately by The New Yorker. No, they did not do anything without her consent.
For three years after her operation, Leggett lived happily with her device. But in 2013 her neurologist gave her some bad news. NeuroVista had run out of funding and ceased operations. Leggett’s neural device would have to come out.
Leggett felt grateful that everyone involved was sympathetic to her plight. They let her keep the implant as long as possible. But the demise of NeuroVista—after spending seventy million dollars to develop the technology and conduct the trial, it struggled to find further investors—made removal inevitable. If the battery ran out, or a lead broke, or the site of implantation became infected, the company would no longer be there to provide support. She remembered a solemn drive to Melbourne for the surgery, and then coming back home without the device. It felt as if she had left a part of herself behind.
These days, when she gets a funny, flip-floppy feeling inside, she takes anti-seizure medication. She’s not always sure. Sometimes she gets her husband to weigh in. He says, “Go with your first instinct,” and usually she takes a pill. She is now seizure-free.
The article also suggests that other patients had problems with the device, which may have contributed to the failure of the clinical trial and recommendation for removal.
Yah. My BS counter is clicking quite a lot with this one.
You can’t force someone into surgery against their will. No hospital or doctor would do that. It would be a major crime. The surgeon, anesthesiologist, who knows how many others, would go to prison! That kind of crime.
The company may have coerced her, with threats of lawsuits. But that’s very different. And the article completely avoids any mention of exactly how she was forced to go through with it. If that information was included, it would only make the company look worse. I can’t think of why it would be left out, given the narrative they’re creating here.There is a lot missing from this story.
I’d bet she took a some kind of settlement that included payment and a form of NDA.Your bullshit counter is broken, Steven
here’s the link from MIT technology review : https://www.technologyreview.com/2023/05/25/1073634/brain-implant-removed-against-her-will/
here’s their imprimatur from the MIT itself : https://news.mit.edu/1995/tech-review-0201
I’d have that clicking checked out
That has no additional information. I’m not saying the story is made up. Just that it leaves out a lot of important details about what exact mechanism was used to “force” her.
The articles point out the company went bankrupt and her doctors advised her to remove the implant. It says she was willing to pay to keep it, and suggests this could have been avoided if another company could have taken over device maintainance.
All of which suggests that the device was removed because it could no longer be maintained, despite her willingness to pay.
The company may have coerced her, with threats
in other words - forced
No. Force is when there are no threats. The “or else” goes away. There are no other options. It’s only “this is happening”.
If a toddler is refusing to wear their shoes. Taking away their toys isn’t force. It’s coercion. Force would be, grabbing their leg and putting their shoe on, no matter how much they scream or cry.
Forcing an adult to do something, is a very extreme action. Reserved exclusively for police, and even they have limits. Even the police can’t force you to have surgery.
For those not reading the story, which appears to be many, the company that services the implant went bankrupt. The implant was experimental. There exists no one to service it any longer. It will pose a health risk down the road without someone servicing it.
The only thing that forced her to have the implant removed is the fact that it would eventually lead to her untimely death if it remained in with no one to take care of the device.
For those not reading the story, which appears to be many, the company that services the implant went bankrupt. The implant was experimental. There exists no one to service it any longer. It will pose a health risk down the road without someone servicing it.
The story doesn’t directly say that’s why it had to be removed (and she talks about wanting to buy it). I found another source that explains that the device came with a three-year battery life.
Even if her death is guaranteed by leaving it in (and I’m not sure it is without more information), does that make it ethical to remove? Perhaps the patient would prefer a shorter life with greater quality in regards to her seizures. After all, don’t we allow and accept cancer patients to forgo treatment and enjoy the time they have left?
She was advised to remove it.
I think “forced” is doing a lot of heavy lifting here. People use it to refer to unpleasant decisions, like “I was forced to leave New York City after I lost my job”.
Frankly the articles I’ve found all use a mix of really weird language. In some places it says she was ‘advised’ to remove it by doctors, which makes a lot of sense. In others they talk about finances and purchasing the implant from the company.
My guess is that it was a combination of factors and while she ultimately did not want to give up the device despite being urged by doctors (she accepted the risk of leaving it in), but she was robbed of the possibility by capitalism and the fact that the company was forced to liquidate assets as terms of going bankrupt or being bought by another company. But we might have to wait for a court case or proper reporting to find out.
I hope we are able to enshrine some rights over forced explantation in the future. As soon as a device is implanted in you, you should own it 100%, no matter the cost of the device. To encourage making this possible even for extremely expensive devices, we should probably offer huge write offs or some other incentive to these companies lest they decide to restrict their purchase to only rich clients.
she accepted the risk of leaving it in
It doesn’t say that. It says she was willing to pay to keep it in, which means she was willing to pay for long-term maintenance. But there was nobody willing to provide maintenance, because the company dissolved. That is why she was advised to remove the device.
the company was forced to liquidate assets
Implants generally go in the garbage after removal.
Implants that failed to gain FDA approval definitely go in the garbage after removal. Nobody else wants them, in fact the company will end up having to pay for proper disposal of medical waste.
